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Help Fight MND - This is the latest Newsletter. Details for donations can be found within.

 

 

October 2015 Newsletter

Cure For MND Foundation

 

A lot has happened since our last newsletter, with many exciting developments for not only MND awareness, but also in regards to our dedication to continually strive to fulfil our three core aims :
 

To Cure, To Care, To Make Aware

 

To Cure:

 

 

 


The Big Freeze at the G

Money raised to help find a Cure

 

Thanks to you, our "Freeze Army" , this years "Big Freeze at the G" was a huge success. Over the course of this years campaign the Australian public got behind Neale Daniher and the Cure For MND Foundation to raise $2.5 million dollars for vital MND research. Along with these much needed funds, unprecedented awareness for MND was achieved on a scale not seen in this country before , with several media outlets across Australia getting behind the cause. 
Some interesting statistics about the 2015 Freeze campaign:

bullet Duration of campaign : 15th May - June 8th 2015
bullet Total number of visits to FreezeMND website : 159,609
bullet Busiest day on the Freeze MND website: June 8th with 38,543 visits
bullet Total of 32,712 Online donations through www.freezemnd.com website throughout duration of the campaign
bullet 14,097 SMS donations 
bullet Donations received from donors located in 94 countries
bullet Over 18,000 Beanies sold online
bullet $750,000 raised during channel 9 Footy Show broadcast  
bullet 19,000+ photos tagged with #FREEZEMND on Instagram
bullet 6,232 tweets using #FREEZEMND on Twitter
bullet #FREEZEMND Trended Number 1 in Australia twice during the campaign
bullet Estimated Twitter reach 35 million
bullet Match attendance Game Day "Big Freeze at the G" - 66,120 people
bullet Peak TV audience during Freeze 1,162,000 viewers 

As highlighted throughout the campaign, the Cure for MND Foundation are committed to spending every single dollar raised in the Freeze MND campaign to the pursuit of effective treatments and ultimately a cure. Read below to see where these vital dollars are headed! 

We can't wait until next year where the 2016 Big Freeze comes back bigger and colder than ever! 

 

MNDRIA

$1.5million : Motor Neurone Disease Research Institute of Australia

 

The Cure For MND Foundation is delighted to announce that we have allocated $1.5 million dollars from this years Big Freeze campaign for multiple research grants awarded through the vigorous scientific and medical appraisal afforded by the scientific committee within the Motor Neurone Disease Research Institute of Australia (MNDRIA). Applications closed on the 28th of August, and applications are currently being reviewed for the awarding of the following Cure for MND grants later this year:

bullet Up to ten (10) $100,000 grants-in-aid: Cure For MND Foundation grants for scientific research relevant to the cause, treatment, or cure of Motor Neurone Disease
bullet Up to two (2) $250,000 collaborative research initiatives: Cure For MND Collaboration grants for scientific research relevant to the cause, treatment, or cure of Motor Neurone Disease, and is part of a multi-centre Australian or international research collaboration. 

Our foundation President, Dr Ian Davis, has also joined the MNDRIA board and will help to oversee the distribution of these funds to the best and brightest applicants. Successful labs are announced following the Annual Grants Application meeting this year in Sydney on November 22nd. We look forward to introducing you to the successful researchers and labs, and introducing their ground breaking projects in a future research update. Stay tuned!

 

 

 

Laugh To Cure MND

Angie and Pat Cunningham named Grants

 

For the second year running, the "Laugh to Cure MND" campaign set up by our board member Pat Cunningham and his wife Angie, will see an additional two MND research grants for $100,000 each awarded through the MNDRIA scientific committee appraisal process. The grants will include:

bullet The Angie Cunningham Laugh to Cure MND grant for scientific research relevant to the cause, treatment, or cure of Motor Neurone Disease. 
bullet The Cunningham Collaboration Grant  for scientific research relevant to the cause, treatment, or cure of Motor Neurone Disease, and is part of a multi-centre Australian or international research collaboration. 

We look forward to sharing with you the outcome of the two projects supported by the Cunningham grants in a future research update!

 

 

 

 


Shane Watson Grant

$150,000 for research into MND

 

Earlier this year, Australian Cricketer Shane Watson signed on as an official ambassador for the Cure For MND Foundation, pledging to help raise awareness and funds for research into finding effective treatments and ultimately a cure.
In this regards we are proud to announce that the inaugural
 

"Shane Watson Cure for MND foundation grant for scientific research relevant to the cause, treatment, or cure of motor neurone disease (MND)"
 

is being awarded to Dr Bradley Turner from the Florey Institute of Neuroscience & Mental Health in Melbourne.
Brad's team are using the money to further their development of a potential therapeutic agent that may prove beneficial in both childhood Spinal Muscle Atrophy (SMA - a form of childhood MND), as well as adult MND. Congratulations Brad, we look forward to hearing about your advances. 
Dr Turner will also be speaking at this years Inaugural Cure for MND Foundation Gala Ball, where we look forward to hearing about his teams fantastic work.

You can read more about Brad's work in this area in a recent Herald Sun article by clicking here

 

 

 

 


Australian Drug Trials 

Bringing HOPE to Australian MND sufferers

 

As part of the funds raised on the "Big Freeze at the G" campaign, the Cure for MND Foundation is working hard to help fund Australian led therapeutic trials for patients with MND in Australia. We aim to make a significant funding contribution to this process, and look forward to sharing developments and news as they come to hand. It is our aim to help bring hope to Australians currently suffering this disease by utilising the best and brightest scientific and medical minds in Australia so that we may all one day live in a world free from MND. We hope to announce the first of the clinical trials we are funding very shortly.....

 

 

 

To Care:

 

 

 

Maintaining Independence 

Wheelchair Accessible Vehicles

 

 

 

As part of our "Care" aim, we are working towards providing loan wheelchair accessible vehicles to people with MND to help maintain community independence and allow these MND patients freedom out of the house. The cost of these vehicles (which is often in excess of $60,000 following modifications) is very often out of range for most sufferers, and we are working on providing an alternative to these patients in terms of a loan vehicle to use within their time of need. We are proud of our partnership with Automobility Pty Ltd​, and will be working to increase our capabilities in this area in the future. Take a look at the video above to see what these wheelchair accessible modified vehicles look like. 

 

 

 

 

Care Partnership

MND Australia

 

The Cure for MND Foundation is working hard to form a new "Care" partnership with MND Australia. By doing so we hope to help the 1900 MND sufferers and their families across Australia by helping provide equitable access to vital assistive equipment and services that will allow MND patients to remain as independent and engaged with the community as possible whilst MND researchers work on finding effective treatments. 
We look forward to sharing new developments with you as they come to hand...

 

 

 

To Make Aware:

 

 

Some recent media coverage of up and coming Cure For MND Foundation events: Daniher's Drive

 

 

 

 

 

Aussie Racing Cars

Cure for MND Ambassadors

 

Make sure to look out for the Advantage Motor Sports Aussie Racing car zooming around the track at Bathurst this year! Driver Jeff Waters has rebranded his car to help support the fight against MND and raise much needed awareness in the racing community. Doesn't the car look fantastic?!!

 

 

 

 

 

Upcoming Events

 

 

Preparations for this years Inaugural Daniher's Drive are well and truly underway. The Drive itself is sold out, and will see over 50 vehicles filled with MND awareness advocates head in convoy through rural Victoria for a 4 day journey filled with fun, mateship, and laughter. We are very excited to get under way! 
If you missed out on a spot on this years Drive, you can still join in the fun and come along to one of the many events held along the way. For further information and to purchase your tickets to these events click the link below

 

 

 

 

Cure for MND Gala Ball 

National Gallery of Victoria 
Saturday November 28th

 

We are proud to announce that iconic Aussie music star Kate Ceberano will be performing at this years Inaugural Cure for MND Gala Ball! Get your tickets soon to avoid missing out!
 

 

This is your opportunity to celebrate with Neale Daniher and all involved in the recent "Big Freeze at the G" in one of Melbourne's most iconic and beautiful venues.
Tickets are selling fast to this exquisite event which is shaping up to be a spectacular night filled with amazing entertainment including Kate Ceberano, celebrity guests, inspirational and engaging speeches, and delicious food and drink.
 

Saturday November 28th, Great Hall, the National Gallery of Victoria. 

 

By attending the gala ball you will also be able to enter a limited raffle where you can walk away at the end of the night with a brand new 2015 Nissan Qashqai thanks to our major sponsor Essendon Nissan.  $100 per ticket and with limited tickets available on the night - amazing odds to win a brand new car!
 

 

 

 

 

 

Brewmanity Hour

"Beer for Goodness Sake" 
October 23rd 2015

 

Spearheaded by former Melbourne Football club Capatin and legend David Neitz, Brewmanity Hour was formally launched recently on the AFL Footy show on Channel 9. We are inviting pubs and bars across Victoria to take part in the inaugural "Brewmanity Hour", where every 1-4-1 Pale Ale sold will raise money directly for the Cure for MND Foundation. 
If you love beer, own a pub, or have a favourite local pub, then now is the time to get them signed up to take part in this years "Brewmanity Hour"

 

 

 

Community Fundraising

 

PK Cycling: Melbourne to Perth 

Joel Knott is preparing to push his body to the limit as he cycles from Melbourne to Perth in support of his father who has been diagnosed with MND. An amazing challenge for a cause close to Joel's heart. You can learn more about this journey and support Joel by clicking here

 

 

 

Ride to Cure MND: Sydney to Melbourne 

On December 1st 2015, Rob Ferlaino, Chris Hargreaves & Conor Grace will ride from Sydney to Melbourne to raise awareness for the Cure For MND Foundation. The guys are determined to push their bodies to the limit, and along the way raise as much awareness and funds for MND as possible. You can find out more about the boys and support their efforts by clicking here

 

 

 

Everesting for MND

Chris Cavanaugh is an MND hero... Chris climbed the 1,000 Steps in the Dandenong ranges recently 36 times!! Thats the equivalent of scaling Mount Everest. An amazingly courageous effort, Chris climbed non-stop over more than 24 hours, day and night through the bitter Melbourne cold, in order to complete the challenge and raised over $4,000 for MND. Neale joined Chris for one lap of the climb! 
You can still support Chris by
clicking here to donate

 

 

 

   

Want to help raise awareness and funds for MND? Just like the guys above, you can set up your own fundraising and event page on Everyday Hero, or enter one of the already established events near you! 

 

 

 

 

 

 

 

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